the glocalized network in theragenomic and personalized medicine and the genetics of individual patients safety of drugs
April 14, 2024 – There have recently been several media publications along the lines like “Mom with ‘one-of-a-kind’ disease that causes tumors to grow over whole body terrified of dying alone” referring to a female patients out from the Jamaicas suffering …
Neurofibromatosis (NF-1): Terrifying tumour growth over the whole body Read more »
March 15, 2024 – On the occasion of International Rare Disease Day on February 28, the Swiss Foundation for People with Rare Diseases drew attention to the current challenges and needs of those affected. In Europe, a disease is considered …
Rare diseases: No diagnosis or the most expensive drug in the world? Read more »
February 10, 2024 – Noma is a disease that many people prefer to ignore. The sight of the affected small children is unbearable. There are open wounds on the face. Entire cheek areas appear as if eaten away. Children who …